A year has flown by and I am just released that I have been clean of prescription drugs for a year now!
Coming off Azathioprine was a big milestone for me and I am glad to report I am feeling great.
My mantra is to try and stay health and not get to stressed. Hard sometimes when you have a full time job and two kids!
I still do have the occasional naughty smoke and still like a few drinks and a night out. Something I need to keep an eye on.
I did catch the Norovirus a few months back. Luckily knew straight away it wasn't my Crohns. Very different feeling and hit me like a steam train.
Wishing everyone a great health and fun times in 2013!
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4 comments:
So far your blog has been the best I've read. I'm the mom of a Crohn's sufferer and he is suffering now. In 2011 he had an unusual amount of illnesses and still made it to work. Still celebrated his 21st birthday in june (legal age for bars, already a party guy)(Very physically demanding work). He was still in good physical condition (lifting weights, special nutrition suplements). October 2011 he crashed, 1st surgery..fistulas, infection, a mass of useless small intestine. 2 1/2 feet or 76 cm, I think that's right. 1st doctor was private practice referral from the hospital...let's cancel him out as useless. Son went to more specialized doctor and still in pain and really sick. Started Humira in May 2012. Went for surgery (after much coaxing from August 2012 until December). 2nd surgery Feburary 2013. We were told it would be a 2 hour surgery and it was between 8 and 11 hours. Previous inflammation had fused his small intestine to several organs. 40 cm taken out. THAT relieved a lot of upper pain. And, hospital can stop calling him a drug addict. (surgery site low near coln, I should have said that). He likes the present G.I. but we don't like the adjoining hospital. Went to another farther away that really specializes. I don't know why we didn't know that before. Too much shock I guess. I'm pretty much the only person that's always up on what he's feeling. And, he researches and I'm beginning to understand more. The last place is where he'll go from now on it's the only place that understands his disease. I read through your blog and for the 1st time I am understanding the concept of eventually getting off medications for Crohn's. He had more inflammation since the last surgery and his Humira is now twice the dose. But, he still doesn't feel well. (I don't have to explain that to you I guess). I'm wondering where to start with his eating and nutrition. Of course he's not absorbing anything much. I've mentioned juicing (he mumbles a negative response) He was tested for gluten allergy. But, would that show a yeast intolerance. He craves more sugar than I've ever seen him eat. Where to start? If I can get him to call the nutritionist from the last place, can they help? It is a hospital with an IBD Center. But, just when I think we might have found something, it goes no where. He never smoked. For now he doesn't drink. He likes his job, they've found lighter duty for him. The hours are at night. (that's all they have for what he does and their business in hours..) Where to start is my concern...how to push him to ask more of this IBD Center. He's 23 yrs.old now. Frustrated and concerned with very painful pain in lower abdomen and no energy. I've said a lot here. Talked too much probably. Just hoping for some insight to begin the journey to a better quality of life. Thanks, for the blog. Some things finally made sense.
Thanks for you comment. It is nice to know the blog is of use to someone out there. I keep meaning to post more updates.
Sorry to hear you son is unwell. Sounds like he has had a rough ride. Its hard to know what to suggest. Sounds like he has a strong Mum who really cares for him. That matters a lot. Keep trying different things. It seems a lot of suffers find there own way of coping, mostly related to diet. Having something you enjoy is important. Hopefully your son can continue the work whilst he gets through this. Best of luck to you both.
Thank you
Thank you
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